Somerville, NJ, November 10, 2011 –(PR.com)– There are not many resources out there for parents of children with Tourette Syndrome, a neurological disease that affects as many as 1 in 100 kids — most of them undiagnosed, misdiagnosed and misunderstood.
To help further bridge the information gap, the New Jersey Center for Tourette Syndrome Associated Disorders (NJCTS) — which provides answers for these kids and their families through referrals to programs and services, education and training so that families, peers and professionals will be better qualified to help those with TS — has launched the TSParentsOnline blog at http://www.njcts.org/tsparents.
TSParentsOnline is a place for parents of kids with TS to share ideas, opinions, stories and expertise, as well as connect on ways to support each other. The blog, which was launched Monday, Nov. 7, will initially feature parent bloggers from New Jersey, but is open to anyone worldwide — either for participation or simply reading.
KarenP, one of TSParentsOnline’s bloggers, had this to say as part of her first entry:
“My doctor told me when Zack was diagnosed that it would get 100 percent worse before it got any better. He was right. It has been almost 2 years, and I have watched my son getting worse — sometimes by the day, it seems. He has pulled muscles in his sides from ticking, thrown his head back and forth so hard I was afraid he would hurt himself and has become extremely verbal.
“I have watched as strangers have stared at my son and pulled their children away from him as if he had something they could catch. Tourette’s has changed all our lives so much.”
Those wishing to participate in the blog should contact NJCTS‘ blog administrator at [email protected].
TSParentsOnline also is available on Facebook at http://www.facebook.com/TouretteSyndrome and on Twitter at http://twitter.com/TSParentsOnline. More information about NJCTS is available by visiting www.njcts.org or by calling 908-575-7350.
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