Somerville, NJ, March 05, 2012 –(PR.com)– Since being introduced by the New Jersey Center for Tourette Syndrome Associated Disorders (NJCTS) in November 2011, the TSParentsOnline blog has helped countless number of parents from all over the world whose children suffer from Tourette Syndrome, a frequently misdiagnosed and misunderstood neurological disorder that affects as many as 1 in 100 people.
Some of those parents have had experience utilizing the Internet to help find solutions to improve their children’s lives, while others have said they know absolutely nothing about blogging but decided to try it because they didn’t know where else to turn.
KatieB (whose full name has been withheld as per NJCTS blog protocol) fits into the latter category. When she typed in http://www.njcts.org/tsparents to see what it was all about, she didn’t know what to expect. What she found, however, was one of the Internet’s premier resources for parents of children with TS.
“Well, blogging has sure been informative. I appreciate all the feedback,” KatieB said after receiving multiple comments on her initial entry – titled “We want to make better choices for our TS son” – almost immediately. “We will continue to fight for well being and quality of life. Thank you again for the support.”
KatieB’s story is not unique. Scores of parents from not only the United States, but also from countries such as Canada, England, Belgium, Germany, the Netherlands, Australia, Ireland and Indonesia have flocked to TSParentsOnline to read, comment and contribute.
The blog, along with its teenager-based companion Teens4TS (http://www.njcts.org/teens4ts), have received tens of thousands of hits since their inception late last year. More than 100 contributions have been made. Several hundreds of comments have been registered. And new requests to contribute are coming in to NJCTS all the time.
RuthieP, who is one of Teens4TS’ top contributors and also has her own blog, believes that if you are a teen or a parent of a teen with Tourette Syndrome, then checking out Teens4TS and/or TSParentsOnline is a must.
“It’s always good to hear from someone who is in the same boat as you are,” RuthieP said in a comment on Teens4TS. “I try not to think of my Tourette’s as hell, but it can get really hard to deal with (alone).”
TSParentsOnline and Teens4TS currently are welcoming new contributors. Anyone interested in participating should e-mail the blog administrator at either [email protected] or [email protected].
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